Saturday, May 30, 2009

Saturday, May 30, 2009

Today was quiet, forgot to write yesterday that the doctor started CP on a new medicine. This medicine is taken at bedtime and will help him sleep through the night and is also an anti-depressant. I will be talking to the doctor on Monday to see if there is any change. This came about because we talked about CP's withdrawl from interaction, and refusal to socialize. When we invite him to have dinner upstairs with us he refuses. He says that he is a burden and doesn't want to intrude on our time. We have assured him that we want to spend time with him. But, we always have to go down to his room to spend time with him. Dr. N said that this is depression that is typical with Alzheimer's and that is why he started the new meds.

CP slept all night last night, and he most of the day. This is not unusual, this is becoming the "norm". This evening we convinced him to come upstairs for dinner with us, it will have to be the last time. From now on we will have to start going down to have dinner in his room. He cannot negotiate the stairs at all. He got angry when Reid said that we would just come down. He is upset that his body is no longer cooperating with him. Another option, which we all think is a nice one, is for us to eat on the patio. CP likes it when we do that.

Friday, May 29, 2009

Doctor Appt.

CP had an appointment this afternoon, he was very quiet today. This is unusual. All the way to the doctor he didn't speak to me. When we got to the doctor he said nothing, when we got into the exam room he asked me if he was seeing the doctor and I told him that he was. He said, "He is a nice man, the best doctor I've ever had."

CP remained quiet all during the exam. We discussed his night confusion, delirium, and the efforts we have taken to ensure his safety. We have alarms on all exterior doors so that if the doors are opened we will be alerted instantly.

I informed the doctor that CP is still 33 on the waiting list for the VA and he tells me that we have to begin looking at other facilities. He wants him on 2-3 waiting lists so we will begin looking at other facilities ASAP. We trust the doctor very much. CP told him, "But, I don't want to go live anywhere else, I like living with Reid and Barbara." Dr. N explained that as his physician he has to be concerned about his safety. He explained to him that when he gets confused that he has the fight or flight mentality and that due to the Alzheimer's he chooses flight.

Reid and I are very sad to hear this. We had really hoped that CP could live with us for about a year, it is apparent that more than likely CP will be going into a home by the fall (according to the doctor).

Thursday, May 28, 2009

Thursday, May 28, 2009

I took today off to rest. I have been out of town for the past week and on the go every minute that I was gone. So, I gave the caregiver the day off and stayed home in my jammies until noon and just hung out with CP. He didn't realize that I'd been gone either.

At lunch time we went to see Reid at work. He didn't want to get out of the car when we got there, so Reid came out and we all went out and got something to eat together. CP was crabby with me today, that hasn't happened in a long, long, long time.

He woke at midnight last night and was afraid, didn't know where he was and opened the garage doors to get our attention. Reid told him that he was safe, was in our home and able to calm him down. He stayed with him for a while to make sure he was okay.

Wednesday, May 27, 2009

May 21-25, 2009

Last night Reid called my sister, Brenda, she lives 1/2 mile from the nursing home. He asked her to go check on CP today, she is going to go at 7am 12pm and 4pm. Reid is very uneasy about this.


At 10:00am I talked to my mom and dad. Everyone in the family has decided that Reid will not enjoy his trip to PA if he is worried about his dad. So, my wonderful family stepped up to the plate. Reid had CP discharged from the nursing home at 12:00 pm and took him home. My niece, who is studying to be an RN came and stayed until 10:00 Saturday morning, at that time my mom and dad came and stayed with him until 10:00 Sunday evening when Reid returned from PA.

Reid and I are so thankful for my family. They didn't have to do that for us, but they did...that is just who they are! AWESOME...in my book. It is even more amazing when you consider that my mom is battling cancer and undergoing treatments.

While we are gone, CP doesn't eat as well as he normally does. When Reid returned he doesn't even realize that Reid has been gone.

Wednesday, May 20, 2009

Wednesday, May 20

Reid dropped me off at the airport for my trip to Pennsylvania for Ryan's wedding. Afterwards he took CP to the nursing home where he will receive respite care during our absence.

After work, Reid went to see CP. It was about 6:30 and CP has finished eating dinner, he is despondant and does not even acknowledge Reid's presence. When he dropped him off he discovered that the condition of the facility was not what it was when I checked it out, CP's room was dirty and things didn't seem "right".

Sunday, May 17, 2009

Sunday

This morning we all went to church, after church he shook my Dad's hand and said, "Hope you have a good week Mr. Squires." We came home and had a snack then at 1:30 went to my brother's house for a graduation party. CP loved the BBQ chicken. He had a terrible time negotiating the stairs, so this will be the last time he can go to that brothers' house. While we were eating we were talking about Reid and he said to me, "Is my husband being good to you? If he isn't tell me and I'll whip him." He is really getting confused about relationships.

Saturday, May 16, 2009

Hanging Out

Last September for my birthday Reid gave me a gift certificate for a day at a local Spa. So, I held onto it figuring that the week before the wedding would be a good time to pamper myself.

Reid and CP spent the day together. They went out to lunch aroun 11;30 and then shopping. He tires easily so they didn't stay out too long. After they got home he read his Reader's Digest most of the afternoon.

Friday, May 15, 2009

Nancy's last day

CP knows that he is going to a nursing home while we are in PA. He is starting to worry that we will rent out his room while he is gone. Nancy and Jennifer assured him that we don't want strangers living in our house and this is just temporary.

Nancy's notes:
PT went well, he allowed us to apply ice for 20 minutes afterwards. He took an hour to eat his lunch today and then we took a short walk. With the approaching storms we didn't want to venture far from the house. After lunch CP didn't want to do much. He preferred to watch TV and relax.

It has been a pleasure taking care of CP and hope that he and Jennifer get along as well.

Thursday, May 14, 2009

Went out for ice cream

Nancy's notes:
Today Jennifer joined us, she will be taking over CP's care next week. The therapist came and he cooperated with her and did his exercises. He said he has created a new snack, peanut butter on shredded wheat. We went for a walk, played checkers and then the three of us went out for ice cream. CP shure loves his ice cream.

Wednesday, May 13, 2009

Catching Up

I got busy yesterday and forgot to write. Yesterday was interesting to say the least.

Dr. Niewald has ordered physical therapy for CP's torn rotator cuff. He absolutely pitched a fit with me and yelled at me and told me I was wasting his money. I told him that the doctor said if he doesn't do it that his arm will freeze up and he will lose the use of his right arm and that we'd have to wipe his butt and put him in a wheelchair. He said, "Well...I don't want that so I guess I don't have a choice." Typical things during the rest of day, nothing out of the ordinary.

Today - He had his first physical therapy and Deon said he did good. They rated him as a fall risk. Which is no surprise. Doing ice packs and exercises 2 times a day.

Sunday, May 10, 2009

Mother's Day

We went to church this morning and then we went to my Sister's for lunch. There were 27 there and CP did fine. He remembers a few names but mostly calls them "my" people. He seemed to enjoy just watching everyone.

For dinner we made chicken alfredo. CP loved it. He calls it chicken aflredocatchetor. I created a new dish. :D

He spent the day reading his Reader's digest. He loves it. We got him a subscription to the large print edition.

Saturday, May 9, 2009

Fixed on tasks

Today was "date" day for me and Reid. We went and moved his furniture from the hall into his office. (ha ha what a date huh?) Oh well.

While we were gone, Jenni is going to stay with CP. Once again, we are still working on Popeye. He doesn't want to walk today and that is okay.

Friday

Nancy's notes:
CP is doing fine, very alert. He remembered beating me at checkers.

Reid came home from work at 11:30. He's worked long hours this week. When I got home from work he was mowing the grass. I fixed dinner and carried it down to CP. I told him that dinner was ready and he said, "I don't know what the point is. I may just lay down and die. I'm not useful to anyone!" I asked him if he'd had a bad day and he said, "Yes, I did. Well, no not really." I just ain't worth a damn to anyone. I go out and tell Reid and he explains that before he got home from work CP told Nancy that he was going to go mow the yard for Reid. Nancy naturally won't let him. CP watches Reid mow out the window and feels left out and useless.

I gave it some thought and decided that I could help him feel useful. I cooked dinner on the grill and went down and told him he had to wash the patio table so we could eat outside. He said, "I'd be glad to do that." However, when I ask him he is drawing Popeye. After 10 minutes I clean it myself. I tell him to come eat it is getting cold. He is still drawing Popeye. He starts to get up, and says "Oh me, I forgot to draw his pipe." He sits down and starts drawing again. I tell him that it will be waiting for him after dinner. He starts to get up and stops and starts drawing agin. Finally I gently take the pen from his hand and give him his cane and tell him Reid is waiting at the dinner table.

After dinner, he returns to his chair and starts diligently working on Popeye again. At 8:30 Reid goes down to check on him. He is still at the desk drawing. He generally goes to bed at 9:30 without any trouble so we go to our room to watch a movie. We fell asleep during the movie. I woke up at midnight and went to get a drink. Through the baby monitor I hear CP's tv. I go to check on him and he has fallen asleep sitting at the desk working on Popeye.

I cannot see him breathing...he is so quiet that I panic and think he is dead. I'm afraid to touch him. He takes a deep breath and my heart skips a beat. LOL now I'm afraid to wake him for fear I'll scare him to death. I gently touch his arm and wake him up and he is stiff from sitting so long. He gets up and goes to bed.

Thursday, May 7, 2009

Busy Day

Nancy's notes:
We took 3 short walks today. CP got a little tired, stopped to rest and then he wanted to go on. He said he is not "swimmyheaded" today just a little tired. We sat out on the patio under the umbrella and played checkers.

At 1:30 we went to Sheridan's for ice cream. CP loved going out and getting ice cream. He even remembered that you said I could take him again. At the end of my shift he is quiet, sitting in his easy chair watching tv and reading the Missouri Conservation magazine. He is tired after our busy day.

Feeling Useless

CP slept late again this morning but woke with some energy. He and Nancy went for 2 walks, played checkers and went out for ice cream.

Nancy's Notes:
Today was a good day. CP is not "swimmyheaded" but he did get tired on the walk. I encouraged him to turn back for home and he didn't want to so we went one house further. After we got home we sat out in the back yard on the patio, I put the umbrella up so that he could sit in the shade. While we were sitting there he asked me if this was Reid's house. I gave him a Missouri Conservation magazine and he seems to be enjoying learning something new.

When I got home at 5:00 Reid was mowing. I carried in the groceries, fixed CP's dinner and he wanted to eat in "his room". I took it down to him and he was in a grumpy mood. He told me that he might as well just lay down and die. Said, "I've lived beyond being useful to anyone." I asked him if he'd had a bad and and he said that he had. I asked him what made it a bad day and he said that all my life all I wanted to do was retire and have nothing to do. Now that that's where I am...I hate it.

We are going to try to get him out of the house more often. We'll see if that helps!

Wednesday, May 6, 2009

Just relaxing

CP was worn out from the doctor's appointment, going out to dinner and the band concert. He slept in late. He read and watched TV, did take 2 walks and played a game of checkers.

Nothing out of the ordinary.

Tuesday, May 5, 2009

May 5

When Reid went out to get the newspaper at 5:00 CP was already up and the light was on in his room. He was listening to country music on the radio.

Nancy arrived as usual at 7:50 and said that today he was done with breakfast in 30 minutes. They went for a short walk and then he had lunch, again was done eating in 30 minutes. I got home at 1:00 to take him to his doctor appointment.

Dr. Appointment:
Follow-up on his shoulder tests show he has torn his rotator cuff. Due to age, Alzheimer's and Hydrocephalus no one would consider operating. So, we will begin Physical Therapy. Since he is "home bound" they will send someone to the house.

We discuss the fall last week and the fact that we need to have a DNR at the home in case something should happen when the caregiver is taking care of him. CP told the doctor that he wanted to die naturally if he should have a heart attack or stroke. I told him that Reid and Susannah are both in agreement. So, we have a signed DNR at the house.

We went home, CP took a 30 minute nap and then he and I went out for tacos for cinco de mayo. Then we went to see my 12 year old nephew's 6th grade band concert. CP loved it. Reid has been in Sales Meetings all week, his salesmen are in from CA, GA, TN, TX and othe places so tonight they all went to a KC Royals Baseball game.

Monday

Gotta catch up.

Sunday - kinda quiet, Jenni came and stayed with CP while Reid and I went to a function with his new employer. He was "typically" forgetful but nothing out of the ordinary.

Monday:
CP is complaining of being "swimmyheaded" his left ear and eye bothering him. Called the doctor and the doctor and he said that unless it became evident that he was having a heart attack or stroke that he'd see him on Tues. at his next regularly scheduled appointment. He is somewhat confused, took him from 7:15 until 8:40 to eat breakfast and from 12:15 to 1:140 to eat lunch. He wanted dinner downstairs so I took it down at 5:45. He didn't finish eating until 7:00. I heard him still up at 10:30 so went down to check on him, didn't want to take a chance he had fallen asleep in the recliner, and he was sitting at the table and eating peanut butter and crackers. (Reid was already in bed as he has a sore throat so I told him to stay away from CP.) I showed him the time and he went to bed at about 10:40.

Saturday, May 2, 2009

Quiet Day

Well, it's Saturday evening and today has been relatively normal. Of course CP has forgotten some of the details he forgets on a daily basis but that has come to be expected. Tonight at 6:00 Reid was mowing and I was cooking dinner, CP went outside and was watching him so he stopped and asked if he needed anything. CP said, "Son, did you forget my dinner?" Reid explained that I was cooking and it would be there shortly. It wasn't an acusation, Reid said it was more like "hurt" that we forgot him.

Friday, May 1, 2009

Birthday Boys!

This will be a 2 part blog today. It is 10:33 am.

I had a thought in the night that perhaps CP's confusion was med related. Reid spoke with the doctor this morning and he said the he believes this is just the progression of the Alzheimer's. The confusion upon waking is typical of the progression of the disease.

Will write more later today.

It's 9:45 pm and part 2.

Nancy said that they had a good day. She took CP to Sheridan's for ice cream and then they walked arond the pet store and looked at the animals.

We went out to dinner at Granite City. CP and I shared a Bedda Chedda Burger and fries. He was very fixated on his meal. He divided all of his french fries into groups of three and dipped them in ketchup. After a while he changed and made them all groups of 4. When he had about 12 fries left he took the onions off of his hamburger and spent about 5 minutes cutting them up, he then spread ketchup on the onions. Next, he proceeded to dip his french fries into the ketchup and onions, when the fries were gone he at the ketchup onions. He took about 3-4 bites of his burger and said he was full. The waitress brought out a dessert for his birthday, a large chocolate chip cookie (the size of a dinner plate) with and ice cream scoop on top and a candle. He got all excited about having dessert and we gave him the ice cream so I could start cutting up the cookie. He ate 3-4 bits of the ice cream and then started cutting his burger up into small slices and dipping it into the ice cream. Reid finally said, "I'm full that was a big burger" and CP said I'm stuffed too and started eating again. So we decided that he thought he had to finish everything on his plate before we could leave so we both stood up and he just followed our lead.

In the car he was confused. Reid told him that when we got home we neended to give him his dinner meds. He said that he only takes them two times a day so he would just wait until morning. Reid said, "Pop your meds are at the house and we will get them when we get home." CP said, "I can get them tomorrow when I go home." Reid said, "Pop you live with us now." CP said, "Oh, I thought I was just visiting. That's right, I live with you now in your basement."

While laying in bed Reid and I were talking about the day. We both also noticed that CP wasn't using his right arm very much either. When he talked to the doctor earlier in the day we were both at work and so we didn't really have a chance to talk about what he had said. The CT scans show 2 TIA's. We have a follow-up appointment on Tuesday so will ask more questions about it then.